Thursday, November 10, 2005

Okay, Okay - Part 2 Already

Okay ... I heard y'all. Sorry about that. It really wasn't my intention to leave you hanging like that.

Meet, Jean - That beautiful lady in the photo with Stephen up there is Jean. She's so much more than respite provider. She's family now. Stephen adores her!  She has been working with him for almost 10 months now. Gosh, I didn't realize till just now, how long. We've never had anyone stick with us that long. We've never been able to depend on anyone else to take care of him like she does. On a regular basis, that is. My mom used to help from time to time, but hasn't physically been able to in a long time. Speaking of my mom, she could really use prayer. She finds it hard to just get out of bed and walk down the stairs. I hurt for her and I'm angry with her all at the same time, for she still refuses to even try to quit smoking. She knows that she has an aneurysm and emphysema, still, she keeps puffing away and has given up on life. It is hard for me to be around her for long periods of time, I catch myself wanting to shout at her or shake her,  just to get some sense into her. She can't have a conversation for coughing to the point she loses her breath. If a friend comes to visit, she won't go to the door. She's just staying in bed, wasting away. At this rate, she won't be with us much longer. ::sigh:: I can't talk about this anymore. I've gotten off the "happy" subject anyway. I'll continue ...

Now, the rest of the story. I was saying that Jean led us in prayer about the waiver denial. I got the phone call on Monday from Stephen's case worker and we saw Jean on Tuesday and broke the news to her. We formed a circle, all 4 of us, Stephen included, and prayed about it. [Of course, Stephen's attention span is even worse than mine and he decided to go to his room and get lambchop to throw around while the grownups prayed.]  I felt a calmness after she prayed that prayer and I knew that no matter what happened, all was going to be okay. If Stephen lost his medical coverage, God would provide a way for us to afford his medication. I slept good that night. The next day [Wednesday], I decided to ask God for favor in this situation. Stephen's dad was here and he heard me say, "Let's put Joel Osteen's theory to the test. [I've been reading his book, Your Best Life Now) Let's keep this positive attitude going and be thankful in advance that it will work out. I pray that Stephen's case will land on the desk of someone in Montgomery to review, and that person will have a desire that they can't explain to look into this case and want to help Stephen." That's the last time we spoke of it. On Thurday, Stephen's case worker called and wanted to know if I was going to appeal Medicaid's decision. I said, "no, it's hard to argue with them since they changed the guidelines and I just don't have the strength for the fight. We're going to leave it in God's hands." [At first, I was going to appeal it, but then I had the feeling that all was going to work out, no matter what and if I had written for an appeal, it would be tied up for a long time. We would have to go to Montgomery before the board and to tell you the truth, I don't have the energy for that. So, we just left it in God's hands.]

A week went by. The following Friday, I got a phone call from Stephen's case worker again, and she said, "Mia, this is ________. You guys have been praying haven't you? My mouth just sort of dropped open and I asked her what was going on and she said, "I just got a call from ______ in Montgomery and she said, "I'm looking at the Stephen______ case and I can't explain why I feel this way, but ... I feel that we have moved in haste when we denied him. Can you tell me anything else about this child so that we can get this resolved for him? She told her, "Well, his mother mentioned that he has a heart and lung disorder that isn't on his paperwork. We have his primary diagnosis as Cerebral Palsy, but  believe me, even though he is able to walk, and he's not being fed through a G-tube, this child is never going to be capable of living alone. He'll always need someone to take care of him. His mother is his primary caregiver and I hate to see her lose the 7 hours of respite, and the cost of the medication alone will break them. What can I do to help him stay on the program?"  The woman told her to talk to Stephen's Dr and find out all she can about his Pulmonary Artery Sling. [that's the name of his heart/lung disorder] She said, "Mia, this is not a promise, but it sure sounds hopeful. It's better than the news we got last week, and I'll tell you, I've never seen them do anything like this! When they make up their minds in Montgomery, it's done." Well, my jaw was still on the floor from hearing the exact words, "I can't explain why I feel this way, but..." The hair on the back of my neck was standing straight up. I had goose bumps. I knew that not only was everything going to be okay, but more importantly, God heard my exact words when I prayed that prayer just a week ago and those exact words came back around to me. Donna and I got our thoughts together, she was going to hang up, call Stephen's Dr and fax this info ASAP to Montgomery. Stephen's services were due to end on Monday [Halloween] That Monday, his case manager called me and said, Happy Halloween! This is no trick, but a treat, Stephen's case has been been redetermined, he's not going to lose his medical waiver and services! Isn't God, good?"  I was so happy, tears of joy filled my eyes again, but I wasn't in shock. When I got the call from her on the previous Friday, that was the confirmation I needed. Our prayers were heard. On Friday, I accepted that this was going to work out for Stephen. I had no doubt that Stephen had the favor of God. 

Until this happened, I'll tell you the truth - -  My spirit felt as dry as the Autumn leaves I walked on the other morning in the woods. My soul was thirsting for reassurance that God was still there, that He could hear me. I felt so separated from Him at times.  Now I am reminded that not only is He out there, somewhere ... He really does walk with me.  


babyshark28 said...

awww, mia.  what an encouragement you are!   no wonder God favors you and wants to encourage you as well, he does reward the faithful, does he not?  :)

so glad everything worked out!  what a
hugs to you all. :D

my78novata said...

wow see what blessings you have. and yes To Rachaels peole she works for she is famiy to them. They evne want to take her on trips with them. with all benifits and would really buy her the moon!!!!!!

bridgetteleigh75 said...

Oh Mia...I knew the story ended happily, but truly...what a miracle!  As I sat here reading this, even though I already knew it had a happy ending, I too got chills running down my spine and could feel the hairs on my neck stick up.  

Stephen must be one of God's little angels.'s just a wonderful story.  And I'm just SO thankful his medicaid waiver wasn't denied.  I don't know what we'd do if Parker's was.  <sigh>  

Jean sounds like a wonderful're very lucky to have someone so loyal.  



jamcs605 said...

What a perfect picture and just look at how comfortable they are together.  I'm so happy you have her for Stephen now, and of course to help you too.  

dbaumgartner said...

Your story gave me goose bumps!!!!  I am so happy for you, Jean and Stephen!

danniboo05 said...

hey i found your link and just wanted to give you mine if you get bored stop by and check it out

wfhbear said...

I enjoy the window into your life and times. Thanks for the look. I enjoy hearing of both you and Stephen. My Regards, Bill.

hunybea4him said...

Wow!  Praise God!  That is soooooo awesome and a wonderful testimony.  

I found your journal playing the jorunal tag game.  If you want to play or know more visit my journal

Much Love,

lsk49rs said...

No one will ever be able to convince me that prayer is the most powerful force on the face of the earth.  You are now on my prayer list too.

Leslie Klinger
Leslie's Universal/Catholic Thoughts

jamcs605 said...

Did you start a new journal someplace else?  I hope Stephen is feeling better.  Owen was here today and we had the bed time story about Chicken Pox that you sent me the link to.  He sure enjoyed it a lot.