Sunday, November 2, 2003

My Cousin Vinny ::Part 2

Stephen has changed our lives in big ways and small ways. Going to the movies, is one of the small things that we miss. After he was born, I went from working full time, to part time. When he was two, I just quit all together till Kindergarten. I went back to work for a short time after he started school, but I soon realized that him going to school wasn’t going to allow me the time to go back to work and earn money, b/c those first few years, he was so sick. So-again, I quit, and Stephen is my full time job now. You’d think when he is well enough to be in school, I could work. And sometimes I do a perm, h/c, or color on the side for extra cash. But, I have become Stephen’s manager, caregiver and-well, his voice. I have had to take classes to learn how the special education system and the Medicaid system work, so that I can advocate for him. I’ve reached out for help. Legal help, so I can know his rights, and prevent what happened to him in 2nd grade from happening to him again, and if possible, prevent it from happening to other children like him. When he is sick, and he is sick a lot this time of year, I am also his nurse. My family Dr. put it in a way that I’d never thought of, when I worked in his office for a short period of time. He said, “Mia, you are a nurse, whose shift NEVER ends.” He’s tried to talk me into going school, and becoming a paid nurse. Yeah, like I have time for that! I don’t even have time to go to the movies…

The last time we were asked, “when was the last time y’all went to the movies?” was in September when Stephen saw his cardiologist. They must have seen, from watching us with him, that we need a break as a couple. The shock on the Dr’s and his assistant’s face was priceless. On our way out of the office, the Dr’s assistant chased us down with her card and home phone #, and said, “I insist that you call me, next time there is a movie out that y’all would like to see! My children are great with special needs children, I’m an RN, he’d be in good hands. Please, just think about it, y’all need to be a couple as well as parents.” Honestly, we see ourselves as “Stephen’s parents” or even worse, coworkers, instead of Mr. and Mrs. There’s an old drive in theater close to her home, I’m thinking about giving her a call, and take her up on her offer J

 

9 comments:

jslack605 said...

You put your words so elequently that you should consider being a lobbyist/advocate for the health care system and speak before congress regarding your situation. I don't know your politacal views but maybe contacting the Hillary Clinton Camp would be a start, or maybe you're more familiar with the representatives in your area. Be generous to that RN and her family and allow them to 'see to' Stephen while you go to dinner and a movie.

aims814 said...

Hi J~! Thanks for commenting, and what a great idea! I happen to love and admire Hillary Clinton! You have given me an idea to check out. (thanks) And thanks so much for the encouraging words you always leave behind :) Stay tuned for new pics of Stephen!

mygr8creatures said...

Mia, I agree with the nurse. He'd be in good hands and y'all need to work on y'all occassionally to. He'd probably have a ball being cared for by someone else who would enjoy him! I did get to go see a movie in the theater this past summer (we also go rarely because we never leave our kids) and it was nice to have that "date" with my hubby (my mom had my kids). Enjoy one with your hubby :)

raisinglouisiana said...

You should take her up on her kind and generous
offer, Stephen will be in good hands.
You and your husband do need time for yourselves
too, there is nothing selfish in having that need, it's
vital and important too!
So, get yourself dolled up, and go on that date!
Love ya, Penny

babyshark28 said...

Yea! go ahead. you and your husband are worth this time together.

freeepeace said...

Yessss it's so important to take care of you and your relationship. That's the best gift you can give Stephen. We love those who love themselves! Take time for you, please! xo

slowmotionlife said...

I agree with everyone else, Mia. You should do it! Go see the new Matrix or something! It's important to recharge the batteries. I honestly believe you'll be an even better Mom once you've had a chance to just be Mia for a little while. Let us know how it goes! I'd love to read about your first movie in 12 years! Amazing. LOL

aims814 said...

ok, ok, everybody... now, get this. The RN lives in a small town that still has one of those old, old drive-ins! haven't been to one since I was a teenager! AND they have double features! two for one! $10 a carload! right up my price-alley too! I'm getting fired up about this! (I just hope she really meant it) lol-

sonensmilinmon said...

Go for it!!! I remember when my kids were young and it was all about the needs of our children and not us as a couple. Please keep that relationship strong and alive plus it will help you to be a better mom ~ think of it as R&R.
(((((Hugs)))))
Smilin Mon